For complete information about genomic data sharing and a link to
the GDS policy, see http://gds.nih.gov.
The NIH GDS governance structure, described at http://gds.nih.gov/04po2.html, will be responsible for oversight of
the GDS policy, including policy needs and issues related to data submission and access.
The GDS policy outlines the responsibilities of investigators and institutions that are using the data and also encourages researchers to get consent from participants for future unspecified use of their genomic data.»
A key tenet of
the GDS policy is the expectation that researchers obtain the informed consent of study participants for the potential future use of their de-identified data for research and for broad sharing.
«Advances in DNA sequencing technologies have enabled NIH to conduct and fund research that generates ever - greater volumes of GWAS and other types of genomic data,» said Eric Green, M.D., Ph.D., NHGRI director, report co-author and a co-chair of the trans - NIH committee that developed
the GDS policy.
Not exact matches
The National Institutes of Health has issued a final NIH Genomic Data Sharing (
GDS)
policy to promote data sharing as a way to speed the translation of data into knowledge, products and procedures that improve health while protecting the privacy of research participants.
The information about you («STUDENT») collected by
GD is subject to this privacy
policy.
By disclosing personal information to
GD, STUDENT agrees to the terms of this privacy
policy.
Security
Policy:
GD undertakes extensive precautions to ensure the security of STUDENT's information both online and offline.