as I was just thinking
about SMA and possibly moving there!
«Given all that is already known
about SMA scientifically, the expanded research that this funding supports will greatly advance the probability of a treatment in the near term.
About The SMA Foundation Founded in 2003, the Spinal Muscular Atrophy Foundation is a nonprofit organization dedicated to accelerating progress towards a treatment for Spinal Muscular Atrophy through targeted funding of clinical research and novel drug development efforts.
About SMA SMA is a severe neuromuscular disease characterized by the loss of motor neurons leading to progressive muscle weakness and paralysis.
More information
about SMA and other neurological disorders can be found on the NINDS web site, www.ninds.nih.gov.
Information
about SMA is available at http://www.ninds.nih.gov/disorders/sma/sma.htm.
About SMA Foundation The SMA Foundation is a nonprofit organization, founded in 2003, dedicated to finding a treatment and potential cure for Spinal Muscular Atrophy (SMA).
About the SMA Foundation Founded in 2003, the Spinal Muscular Atrophy Foundation is a nonprofit organization dedicated to accelerating progress towards a treatment for Spinal Muscular Atrophy through targeted funding of clinical research and novel drug development efforts.
She said she had not given Pfizer / Wyeth permission to email her and was clear she would not have signed up for emails
about SMA formula even if she had visited the site that Pfizer / Wyeth alleges, which she says she had not.
If you would like any additional information
about our SMAs, please fill out the form below.
Not exact matches
In 2014 the Advertising Standards Authority upheld a Baby Milk Action complaint
about a misleading email promotion for the
SMA toddler milk sent to members of the ASDA Baby and Toddler Club.
(For example, the Advertising Standards Authority upheld Baby Milk Action's complaints
about the misleading promotion for Nestlé
SMA toddler milk, shown right.
Last year the Advertising Standards Authority (ASA) upheld Baby Milk Action's complaints
about a promotional email for Nestlé's
SMA Toddler Milk sent to members of the ASDA Baby and Toddler Club (ASA ruling A14 - 263404).
It states that
SMA «experts are passionate
about educating mums on protein during the first 1,000 days of a baby's life, imparting this knowledge now can make a positive difference on babies health that will last into their adult years.»
A current campaign is hijacking the public health message
about the importance of nutrition during the 1000 days from conception and branding it with
SMA.
«Anyone using the new
SMA PRO formula and concerned
about how their child is reacting to it should contact their health worker and can be assured that all brands on the UK market are required to meet legal composition requirements.
Ironically, the bloggers recruited by Nestle are writing
about the importance of protein and sharing Nestle's
SMA - branded video.
In a ruling on 15 October 2014
about claims for Nestlé
SMA toddler milks in an ASDA email, the ASA: «told [the companies] not to state or imply that health could be affected by not consuming a product, or to give rise to doubt the nutritional adequacy of a reference product.»
Nestlé's event was ostensibly
about «food hypersensitivity management in infants and pre-school children», but is part of its strategy to promote the
SMA brand in general, and its new
SMA HA formula in particular.
Various health workers have contacted us
about a curious market research exercise being conducted by the Millward Brown market research company into a Nestlé
SMA advertising campaign.
This week (15 October 2014), the Advertising Standards Authority (ASA) published a ruling upholding our complaints
about a Nestlé promotion for its
SMA baby milks in one of our major supermarket chains here in the UK.
She is passionate
about spreading awareness
about Selective Mutism and
about effective treatment techniques and is excited to contribute to the mission of
SMA through her involvement on the Board of Directors.
Today, the Selective Mutism Association (
SMA) website, with more than 10,000 users per month, effectively increases awareness and education
about this disorder.
Company information is often misleading: Baby Milk Action has already won cases
about bogus claims made for Danone and
SMA formula in advertising.
After nearly three weeks of asking — and a campaign on Twitter — Tesco has finally answered Baby Milk Action's questions
about an illegal promotion for Nestlé
SMA formula in its stores.
When people around the UK came to us
about a prominent promotion for Nestlé
SMA infant formula in Tesco in January 2015, we contacted the company.
A ruling published by the Advertising Standards Authority (ASA) today (A14 - 263404) upholds Baby Milk Action complaints
about a joint Nestlé and ASDA email promotion for
SMA toddler milks (left).
The ASA upheld complaints from Baby Milk Action
about claims in an email to the ASDA Baby and Toddler Club, promoting Nestlé
SMA formula (ASA ruling A14 - 263404).
Given its concerns
about Pfizer / Wyeth's misleading promotion, Baby Milk Action successfully campaigned to stop the company's
SMA Baby Know How roadshow scheduled to tour shopping centres in the UK in June and July 2012 — click here.
For example, the Advertising Standards Authority upheld Baby Milk Action's complaints
about a campaign for
SMA formula in 2012, finding that it mislead mothers.
Baby Milk Action has also registered complaints
about Wyeth's national advertising campaign that suggests its
SMA formula is the best on the market.
In 2012, the ASA upheld Baby Milk Action's complaints
about a national advertising campaign that claimed
SMA is the best formula in a ruling against its then owner, Pfizer Nutrition.
SMA also offers other opportunities to increase awareness and information
about SM through our annual conference, which typically takes place in the Fall and varies in location throughout the country, as well as through the Selective Mutism Proficiency Program, which is an intensive, interactive, and skills - based two - day training program for professionals who work with kids diagnosed with SM.
Here you can learn more
about the exclusive Professional
SMA member benefits.
Family and Professional memberships with
SMA also provide many opportunities for interaction with experts and experienced parents and teachers among other benefits to help educate yourself and others
about SM.
SMA needs your help to raise awareness
about Selective Mutism.
For educators with limited time, the
SMA online library provides handouts with information
about SM, including suggested accommodations and classroom - based intervention strategies for maximizing learning.
The Individual / Family Membership category is for individuals and families who wish to become part of
SMA's community to learn more
about Selective Mutism by using the interactive features and benefits available to them.
SMA members are able to utilize
SMA's comprehensive web site to become more informed
about how to detect the signs of SM and learn
about ways to appropriately find help and support.
SMA offers a wealth of resources for parent use in informing professionals, teachers and others who interact with their child
about selective mutism.
About one in 8,000 children is born with some form of
SMA in which mutations in both copies of the gene that code for the survival motor neuron (SMN) protein cripples its production.
For now, they wrote, researchers and clinicians will continue to share any new data
about nusinersen use in
SMA patients to inform future decisions, including how broadly treatment should be pursued.
«What is most fascinating
about HDAC inhibitors, and not just for
SMA, is that they are gene therapy without having to put the gene in,» Dr. Swoboda said.
About 1 in 6000 newborns are affected, and about 1 in 40 people carry the gene for
About 1 in 6000 newborns are affected, and
about 1 in 40 people carry the gene for
about 1 in 40 people carry the gene for
SMA.
Interested parties are invited to contact the Foundation directly at www.smafoundation.org for more information
about this and other licensing opportunities for
SMA research.
«Instead of an image produced using an average of thousands of different particles, as is done with CryoET,
SMA - STM can produce an image from a single particle in
about 20 different orientations,» Gruebele said.
We are very optimistic
about the potential of moving this drug to IND within the next year, and the lessons we are learning will help strengthen the
SMA drug pipeline.»
Participants are asked to complete questionnaires
about the symptoms, treatment, medications, and other experiences with
SMA.
About AVXS - 101 AVXS - 101 is a proprietary gene therapy candidate of a one ‐ time treatment for
SMA Type 1 and is the only clinical ‐ stage gene therapy in development for
SMA.
SMA researcher Dr. Rashmi Kothary from Ottawa Hospital Research Institute spoke next
about musculoskeletal defects in
SMA.