A few commenters were especially concerned about the impact on states and SSA if the final rule were to eliminate the NPRM's provision for
a broad consent for «all evidence from all sources.»
Hudson, who left NIH last month and commented as a private individual, said NIH can now collect evidence to show whether collecting
broad consent for samples «is doable.»
Not exact matches
The ACLU is pushing U.S. lawmakers to enact
broad privacy legislation including a requirement
for consent prior to data collection.
From the info available that isn't sufficient to amount to
consent for such sensitive data and nor is it clear folks can understand the
broader implications of agreeing.
The
broad regulation is aimed at ensuring people have control over their personal data and that companies gain explicit
consent for data collection and sharing from users, among other things.
globalisation with a human face, global citizenship, sustainable development, good governance, consensus - building, global ethic, cultural diversity, cultural liberty, dialogue among civilizations, quality of life, quality education, education
for all, right to choose, informed choice, informed
consent, gender, equal opportunity, empowerment, NGOs, civil society, partnerships, transparency, bottom - up participation, accountability, holism,
broad - based consultation, facilitation, inclusion, awareness - raising, clarification of values, capacity - building, women's rights, children's rights, reproductive rights, sexual orientation, safe abortion, safe motherhood, enabling environment, equal access, life skills education, peer education, bodily integrity, internalisation, ownership, bestpractices, indicators of progress, culturally sensitive approaches, secular spirituality, Youth Parliament, peace education, the rights of future generations, corporate social responsibility, fair trade, human security, precautionary principle, prevention...
In response, a
broad coalition of European organizations issued open letters calling
for the right to conduct research using personal health data without explicit
consent, if ethical approval and strict confidentiality safeguards were guaranteed.
The provision would force researchers to obtain permission from research subjects
for any new direction of research, with rare exception; subjects would not be able to grant
broad consent even if they wanted to do so.
A key tenet of the GDS policy is the expectation that researchers obtain the informed
consent of study participants
for the potential future use of their de-identified data
for research and
for broad sharing.
But the proposed rule would have required written
consent for broad future use of such deidentified samples.
The report notes the «increasingly blurred distinction between genomics research and clinical care» highlighted by the PHG Foundation, and particularly that the
broad consent process used in the 100,000 Genomes Project is «unlikely to be feasible
for routine genomic medicine in the NHS without an extensive and continuing public debate to raise public understanding and acceptance».
If the Kigali HFC Amendment is sent to the U.S. Senate
for consent, it will need the
broad support from Senators in both political parties to reach a two - thirds majority.
Of the principal issues
for concern, I imagine that they will include the following: the potential administrative penalties will motivate boiler - plate compliance; what falls within the
broader definition of «data»; what constitutes «
consent»; and how to ensure the right to erasure.
Neither does the majority judgment mention the history of violence between J.A. and K.D.. Although the majority's focus was properly on the law of
consent in light of the issue it had to decide, it missed an important opportunity to situate this issue within the
broader context of domestic violence and marital rape (
for a recent study on marital rape, see my report
for the Equality Effect here).
But make sure you have
consent from the applicant
for broad - ranging reference checks.
Foreign Direct Investment into the United States: CFIUS: We are experienced in assisting clients with a
broad spectrum of issues related to foreign investment in the United States, including securing the
consent of CFIUS
for proposed acquisitions.
«Decisions relating to health care» is
broader than
consenting to treatment on behalf of an individual; Start Printed Page 82634
for example, it would include decisions relating to payment
for health care.
The idea of implied
consent is a much, much
broader legal concept that one
for emergency medical treatment; Hawaii was a country too; interstate highways were justified using the National Defense power although interstate commerce is used to justify a great deal of federal activity; the drinking age is justified with spending
for the general welfare.
The
broad regulation is aimed at ensuring people have control over their personal data and that companies gain explicit
consent for data collection and sharing from users, among other things.
«Today, users grant
broad consent to countless apps and services
for collection and retention of their data
for use beyond their control,» the post reads.