Sentences with phrase «by rare diseases»

The purpose is to focus attention on the needs of patients and families affected by rare diseases.

For decades, her efforts have been mainly directed to face the many and complex challenges posed by rare diseases.

Collectively, an estimated 30 million people are affected by a rare disease in Europe with a similar occurrence in the US.

Approximately one out of 20,000 newborns is affected by this rare disease which is considered to be one of the most severe forms of malformations on this spectrum.

The goal of CARE for RARE is to improve clinical care for patients and families affected by rare diseases by expanding and improving the diagnosis and treatment of rare diseases.

The specific vocation of I - Stem is to explore all the therapeutic potential of human pluripotent stem cells for applications in patients affected by rare diseases of genetic origin.

Statistics tell us that 1 in 17 people will be affected by a rare disease at some point in their lives.

Based on the Japanese film, Midnight Sun centers on Katie, a 17 - year - old sheltered since childhood and confined to her house during the day by a rare disease that makes even the smallest amount of sunlight deadly.

Chiesi Ventures is unique in its focus: improving quality of diagnosis, disease management, care and therapy to all patients affected by rare diseases.

Rare Revolution Magazine is a UK - based digital magazine giving a voice to patients affected by rare diseases and the charities that represent and support them.