Sentences with phrase «disease patient advocates»

U.S. Sen. Kirsten Gillibrand vowed Monday afternoon to push for the inclusion of chronic Lyme disease patient advocates on an advisory panel being put together in Washington, D.C.

U.S. Sen. Kirsten Gillibrand vowed to push for the inclusion of chronic Lyme disease patient advocates on an advisory panel being put together in Washington, D.C.

Not exact matches

The project's launch featured a prominent ALS patient and research advocate: Pat Quinn, co-founder of the ALS Ice Bucket Challenge, an initially - derided social media stunt that went on to raise hundreds of millions of dollars for ALS research and may have spurred important new discoveries about the disease's genetic roots.

Portero's organization advocates for people with the rare disease fibrous dysplasia, which causes abnormal growths in patients» bones.

A state Senate task force has called for a comprehensive plan to combat Lyme disease and other tick - borne illness, as well as a legislative commitment to fund research and arm patients with information needed to advocate for adequate treatment.

Written by Institute Associate Sonia L. Canzater, JD, MPH and Jeffrey S. Crowley, MPH, program director of infectious disease initiatives and distinguished scholar at the O'Neill Institute, the report was developed following an expert consultation held in Washington, DC, in September 2016 with diverse stakeholders, including hepatitis C medical and non-medical providers, patient advocates, epidemiologists, and federal hepatitis C policy and program staff.

The authors contend that the Parkinson's community must come together and focus its activism in support of: developing a better understand the environmental, genetic, and behavioral causes and risk factors for Parkinson's to help prevent its onset; increasing access to care — an estimated 40 percent of people with the disease in both the U.S. and Europe do not see a neurologist and the number is far greater in developing nations; advocating for increases in research funding for the disease; and lowering the cost of treatments — many patients in low - income countries do not have access to drugs that are both lifesaving and improve quality of life.

It does makes me feel good to know that some pharmaceutical companies and doctors are working hard for the first time ever to collaborate with patient advocates to improve quality of care for those suffering from this debilitating disease.

Other experts are advocating the use of drugs that are approved to treat other diseases but may help Ebola patients, too.

«They complemented their scientific expertise by working closely with clinicians and advocates from the very early stages of the project, which provided a deeper understanding of how the disease impacts patients and how the treatment can best help them.»

As the stem cell field works toward developing treatments for RP, sickle cell and other diseases, the pursuit is strengthened and the process enhanced by the partnership of patients and disease advocates.

Rare Gene Superheroes is an e-learning educational resource consisting of four, 20 - minute interactive, online modules aimed to train patient advocates with the goal of strengthening and optimizing rare disease patient advocacy pre-sequencing and post-sequencing support functions.

«What makes it an autoimmune disease is the fact that the immune system is producing antibodies against your own tissue,» explains longtime patient advocate Virginia T. Ladd, president and executive director of the American Autoimmune Related Diseases Association (AARDA).

As a patient advocate, researcher, clinician, and educator, Dr. Wentz is committed to raising awareness on how to overcome autoimmune thyroid disease through The Thyroid Secret documentary series, the Hashimoto's Institute practitioner training, and her international consulting and speaking services offered to both patients and health care professionals.

The LCDA advocates for all pediatric patients to be tested for Celiac disease by two years old.

As a patient advocate and certified Holistic Health coach, Audrey Childers is raising the bar on thyroid care and helping others take back their lives from thyroid, autoimmune and inflammatory diseases.

Mary Shomon is a thyroid disease, hormonal and autoimmune health writer, and patient advocate.

Her special interests are networking and community - building, improving patient access to accurate information, and educating, mentoring, encouraging and supporting the next generation of Lyme disease advocates.

To be the devil's advocate, this is good and well if you are vegan, what about patients with cancer, can this reverse their disease?

Sure is confusing when you have people like Dr. Permultter and Dr. Wahls advocating paelo / grain free and even ketogenic disease for those with autoimmune, neurological, and other serious diseases based on their own experience or treating patients.

Crohn's and Colitis Canada will raise funds to: Invest in Crohn's and colitis research to foster advances in prevention, treatments, cures and health policy, educate patients, families, industry and governments about Crohn's and colitis, Increase public awareness of these chronic diseases and our organization and advocate to governments and stakeholders on behalf of those affected by Crohn's and colitis

Thus, while I will always maintain that for conclusively proven, unequivocal Cushings Disease patients, that the best course of action is treatment with trilostane, for borderline Cushings Disease patients, the aforementioned Cushings Disease patients in waiting, and for proven cases of Cushings Disease where treatment is cost prohibitive, I advocate for dietary and natural management of dDisease patients, that the best course of action is treatment with trilostane, for borderline Cushings Disease patients, the aforementioned Cushings Disease patients in waiting, and for proven cases of Cushings Disease where treatment is cost prohibitive, I advocate for dietary and natural management of dDisease patients, the aforementioned Cushings Disease patients in waiting, and for proven cases of Cushings Disease where treatment is cost prohibitive, I advocate for dietary and natural management of dDisease patients in waiting, and for proven cases of Cushings Disease where treatment is cost prohibitive, I advocate for dietary and natural management of dDisease where treatment is cost prohibitive, I advocate for dietary and natural management of diseasedisease.

Washington, DC About Blog American Society of Nephrology leads the fight against kidney disease by educating health professionals, advancing research, and advocating the highest quality care for patients.

Charge Nurse — Duties & Responsibilities Provide exceptional patient care and medical team support across a variety of medical disciplines Responsible for 30 residents with broad medical needs and diseases including dementia, Parkinson's, congestive heart failure, COPD, acute renal failure, MRSA, and stroke Implement physician directed treatment plans alerting medical team of patient status changes as appropriate Maintain patient charts and confidential information in a secure and organized manner Supervise and educate CNA on infection control and patient care best practices Advocate for patient rights striving to understand patient needs and concerns Administer medications via peripheral line assessing IV site and flow rate Monitor urinary elimination including consistency, odor, volume, and color indwelling catheter patients Inspect wounds for type, drainage, odor, presence of undermining and / or tunneling, and pain Collect specimens from patients for a variety of laboratory tests Assess patients receiving oxygenation therapy for symptoms of impaired gas exchange Maintain alignment of the affected joints post total hip / knee replacement Encourages deep breathing and coughing exercises Assesses pain control and evaluates response to pain management Perform all duties with positivity, professionalism, and integrity