In addition, patients may benefit from the advanced care provided by
epilepsy centers if they continue to have seizures despite treatment with two medications, experience unacceptable side effects or are pregnant or want to become pregnant.
Specialized
epilepsy centers provide routine care to individuals with seizures or epilepsy, and specialize in providing comprehensive diagnostic and treatment services to individuals with uncontrolled seizures (i.e., intractable or refractory epilepsy).
If you are seeing a general neurologist, and your seizures have not been brought under control after 12 months, you should request a referral to a specialized
epilepsy center with an epileptologist.
As part of this endeavor, researchers from 17 U.S.
pediatric epilepsy centers enrolled in the study 495 children younger than 36 months old who had been newly diagnosed with non-syndromic epilepsy (a condition not linked to any of the commonly recognized genetic epilepsy syndromes).
Treatment with the RNS System is taking place in Level 4
epilepsy centers throughout the nation following site qualification and physician training.
For example, in a study at an
urban epilepsy center, 50 percent of women experienced unplanned pregnancies.4 Almost 17 percent of these women were taking antiepileptic drugs that reduce the effectiveness of hormonal contraceptives.
NAEC provides members resources, expertise, and tools to support the administration
of epilepsy centers.
We define a
specialized epilepsy center to be a program which not only provides routine care to individuals with seizures or epilepsy, but also specializes in providing comprehensive diagnostic and treatment services to individuals with uncontrolled seizures, (i.e. intractable or refractory epilepsy).
Level 3
epilepsy centers provide basic neurodiagnostic evaluations, as well as basic medical, neuropsychological, and psychosocial services.
Selecting by state will display
every epilepsy center in that state.
To serve both audiences seamlessly, the most prominent homepage information is aimed at the general public, educating them on what
an epilepsy center is, and the services that it provides, and helping them find a member center.
A map locator allows users to find
an epilepsy center near them via zip code lookup, including directions to the facility and the names of key doctors.
A key component of NAEC's work to support strong specialized
epilepsy centers is its development of guidelines and standards for epilepsy center care.
The Guidelines for Essential Services, Personnel, and Facilities in Specialized Epilepsy Centers in the United States — Revised 2010 Guidelines are the basis for the criteria that NAEC uses to accredit level 3 and 4
epilepsy centers.
If your seizures have not been brought under control after three months of care by a primary care provider (family physician, pediatrician), further neurologic intervention by a neurologist, or
an epilepsy center if locally available, is appropriate.
NAEC recommends that patients whose seizures are not fully controlled after treatment for one year be referred to a level 3 or 4 specialized
epilepsy center.
If you are being treated by
an epilepsy center, you can also seek a second opinion at another epilepsy center if you have questions about the care that you are receiving.
The 2018 NAEC Accreditation Process was completed on March 1st and all accredited centers were sent certificates specifying accreditation as a level 3 or 4
epilepsy center.
Anyone with intractable epilepsy should seek care at
an epilepsy center.
The 187 hospitals with accredited level 4
epilepsy centers were reported to US News and World Report in March.
On an annual basis the NAEC Board assesses the standards and criteria for
epilepsy center accreditation with the goal of continually improving the quality of care provided by epilepsy centers.
Level 4
epilepsy centers have the professional expertise and facilities to provide the highest - level medical and surgical evaluation and treatments for patients with complex epilepsy.
If you are seeing a neurologist, and the seizures have not been brought under control after 9 to 12 months, then you should ask for a referral to a specialized
epilepsy center.
UT Southwestern's Epilepsy Program is accredited by the NAEC as a level 4
epilepsy center.
Level 4
epilepsy centers have the professional expertise and facilities to provide the highest level medical and surgical evaluation and treatment for patients with complex epilepsy.
About Blog NAEC supports
epilepsy centers in delivering quality comprehensive care to people with epilepsy, by setting standards of care, advocating for access to high quality epilepsy center services, and providing knowledge and resources to its member centers.