National MPS Society,
With Purpose, National PKU Alliance, Taylor's Tale, RASopathies Network USA, Kids v Cancer, Let Them Be
Little X2 Inc., Info and
Resources for Idiopathic Pulmonary Hemosiderosis (IPH - NET), Noah's Hope, Mary Payton's
Miracle Foundation, Hope4Bridget Foundation Batten Disease Support & Research Association, Cure Sanfilippo Foundation, Beyond Batten Disease Foundation