One can
measure an object's value by different
standards, such as actual material
valuation, functionality, or sentimentality... The objects and materials that I use are for the most part egalitarian.»
Two reviewers will independently assess the suitability of the preference - based instruments for
measuring outcomes in palliative care using the ISOQOL, minimum
standards for patient - reported outcome
measures (conceptual and measurement model, reliability, content validity, construct validity, responsiveness, interpretability of scores, translation of
measure, patient and investigator burden), 43 and the CREATE checklist (descriptive system, health states values, sampling, preference data collection, study sample, modelling, scoring algorithm).44 The ISOQOL minimum
standards were chosen as these
standards were developed from a systematic review of published and unpublished guidance on patient - reported outcome
measures, including the COnsensus - based
Standards for the selection of health Measurement Instruments (COSMIN).46 To the authors» knowledge, the CREATE checklist is the only published guidance on what key components should be reported in a
valuation study.44 Information on how the contents of the instruments were developed, psychometric properties and
valuation will be used to assess the suitability of the instruments for the palliative setting; instruments will be scored on whether the domains or dimensions were developed using input from informal caregivers of people receiving palliative care (yes / no) and whether each of the reporting checklist items has been evaluated for this population (if yes, then a score of one will be allocated) and a total score calculated.
Finally, the degree of suitability of the instruments for economic evaluations in the palliative care setting will be assessed by scoring whether the domains or dimensions were developed using input from informal caregivers of people receiving palliative care and whether items from the International Society for Quality of Life Research (ISOQOL) 43 minimum
standards for patient - reported outcome
measures and the checklist for reporting
valuation studies of multiattribute utility - based instruments (CREATE) 44 have been evaluated in this population.