What is needed, from the perspective of patients with rare diseases, is a hook on which government obligation to fund treatment can be hung. (slaw.ca)
This paper examines the legal tools that may be available to patients with rare diseases seeking to compel Canadian governments to provide funding for required or desired treatments. (cjccl.ca)
However, as noted, for the most part, patients with rare diseases who as a group seek coverage for medications are likely not owed administrative procedural fairness protections. (slaw.ca)