It provides advocacy, education, research and patient services on behalf of rare disease patients, families, and patient organizations. (smafoundation.org)
Ottawa, ON — March 20, 2018 Will a national pharmacare program make it easier or harder for rare disease patients to get the medicines they need? (raredisorders.ca)
Our goal is to complement the current strategic interest of Chiesi Farmaceutici in the space of rare diseases by investing in early stage opportunities and accelerate the expansion of the Chiesi network in the US among universities, venture capital investors, rare disease patient organizations and start - ups developing treatments for rare diseases. (chiesiventures.com)